The following publications by scientists affiliated with the SMSC represent findings from studies about self-management and contributions to the literature about theory, methods, and processes related to self-management or center designation.

Bonis, S. A., & Sawin, K. J. (2016). Risks and protective factors for stress self-management in parents of children with autism spectrum disorder: An integrated review of the literature. Journal of Pediatric Nursing, 31(6), 567-579.

Crowley, T., Van der Merwe, A., Kidd, M., & Skinner, D. (2020). Measuring adolescent HIV self-management: An instrument development study. AIDS and Behavior, 592-606.

Crowley, T., van der Merwe, A., & Skinner, D. (2019). Adolescent HIV self-management: Lived experiences of adolescents, caregivers, and health care workers in a South African context. Journal of the Association of Nurses in AIDS Care, 30(4), e7-e19.

Doering J. (2013). The physical and social environment of sleep in socioeconomically disadvantaged postpartum women. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 42(1), e33-43.  PMCID: PMC3546265. Link to article:

Doering J. (2013). Theoretical contributions to a program of research promoting postpartum health. Applied Nursing Research, 26(2), 96-98.  PMCID: PMC3620732. Link to article:

Doering, J. J., & Dogan, S. (2018). A postpartum sleep and fatigue intervention feasibility pilot study. Behavioral Sleep Medicine, 16(2), 185-201.  PMCID: PMC6156720. Link to article:

Dorsey, S. G., Schiffman, R., Redeker, N. S., Heitkemper, M., McCloskey, D. J., Weglicki, L. S., Grady, P., & NINR Center Directors. (2014). National Institute of Nursing Research Centers of Excellence: A logic model for sustainability, leveraging resources, and collaboration to accelerate cross-disciplinary science. Nursing Outlook, 62(6), 384–393.  PMCID: PMC4253141 Link to article:

Ellis, J. L., Kovach, C. R., Fendrich, M., Olukotun, O., Baldwin, V. K., Ke, W., & Nichols, B. (2019). Factors related to medication self-management in African American older women. Research in Gerontological Nursing, 12(2), 71-79.  PMCID: PMC6918485  Link to article:

Erickson, J., Crowley, T., & Sawin K. J. (2020). Self-management in children, adolescents, and young adults with cancer: State of the science. In P. S. Hinds & L. Linder (Eds.), Pediatric oncology nursing. Defining care through science (pp. 21-61). Springer International Publishing.

Erickson, J. M. & Polfuss, M. (In press). Self-management and patient-centered care: A response to Fawcett’s 2020 essay. Nursing Science Quarterly.

Erickson, J. M., Tokarek, N., Ke, W., & Swartz, A. (2020). A randomized controlled trial of a physical activity intervention for self-management of fatigue in adolescents and young adults with cancer. Cancer Nursing. doi:10.1097/NCC.0000000000000834  PMCID: PMC7744366  Link to article:

Forseth, B., Papanek, P. E., Bandini, L, Schoeller, D., Moosreiner, A., Sawin, K. J., Zvara, K., Fendrich, M., & Polfuss, M. (2019). Feasibility and acceptability of a self-report activity diary in families of children with and without special needs. Comprehensive Child and Adolescent Nursing, 42(4), 293-303.  PMCID: PMC6915061 Link to article:

Forseth, B., Papanek, P. E., & Polfuss, M. L. (2020). Feasibility and applicability of Evenson sedentary behavior cut points applied to children with and without intellectual and developmental disabilities, Disability and Rehabilitation. Advance online publication.

Grey, M., Knafl, K., Ryan, P., & Sawin, K. J. (2010). Commentary: Self and family management frameworks. Nursing Outlook, 58(2), 111-112.

Kovach, C. R., Ellis, J. L., & Schiffman, R. F. (2018). Is assisted self-management a viable concept for individuals with cognitive impairment? [Editorial], Research in Gerontological Nursing, 11(3), 115–117.

Lerret, S. M., White-Traut, R., Medoff-Cooper, B., Simpson, P., Adib, R., Ahamed, S. I., & Schiffman, R. (2020). Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients. Research in Nursing and Health, 43(2), 145-154.  PMCID: PMC7047587 Link to article:

Logan, L. R., Sawin, K. J., Bellin, M. H., Brei, T., & Woodward, J. (2020). Self-management and independence guidelines for the care of people with Spina Bifida. Journal of Pediatric Rehabilitation Medicine, 13(4), 583-600.

Moore, S. M., Schiffman, R., Waldrop-Valverde, D., Redeker, N. S., McCloskey, D. J., Kim, M. T., Heitkemper, M. M., Guthrie, B. J., Dorsey, S. G., Docherty, S. L., Barton, D., Bailey, D. E., Austin, J. K., & Grady, P. (2016). Recommendations of Common Data Elements to advance the science of self-management of chronic conditions. Journal of Nursing Scholarship, 48(5), 437–447.

Ridosh, M. M., Stiles-Shields, C., Stern, A., Winning, A., Anderson, L., Sawin, K. J., & Holmbeck, G. N. (in press). The Adolescent and Young Adult Self-Management and Independence Scale (AMIS-II): Expanding evidence for validity and reliability. Journal of Pediatric Rehabilitation Medicine

Ryan, P. & Sawin, K. J. (2009). The Individual and Family Self-Management Theory: Background and perspectives on context process and outcomes. Nursing Outlook, 57, 217-225.  PMCID: PMC2908891 Link to article:

Ryan, P. (2009). The Integrated Theory of Health Behavior Change: Background and intervention development. Clinical Nurse Specialist, 23(3), 161-170.

Sawin, K. J. (2017). Definitions, frameworks, and theoretical issues in self-management. Journal of Pediatric Rehabilitation Medicine, 10(3-4), 169-176.

Sawin, K. J. & Brei, T. J. (2012). Self-management age-achievement expectations reported by parents of youth with spina bifida [Abstract]. Journal of Pediatric Health Care, 26(5), e43.

Sawin, K. J., Heffelfinger, A., Cashin, S. E., & Brei, T. J. (2018). The development of the Adolescent/Young Adult Self-Management and Independence Scale II. Psychometric Data. Journal of Pediatric Rehabilitation Medicine, 11(4), 311- 322.

Sawin, K. J., Margolis, R., Bookman, J. R. M., Bellin, M. H., Logan, L. R., Woodward, J., & Brei, T. (2020). Analysis of self-management and transition readiness instruments for clinical practice. In C. L. Betz & I. T. Coyne (Eds.), Transition from pediatric to adult healthcare services for adolescents and young adults with long-term conditions: An international perspective on nurses’ roles and interventions (pp. 71-109). Springer.

Sawin, K. J., Margolis, R. H. F., Ridosh, M. M., Bellin, M. H., Woodward, J., Brei, T. J., & Logan, L. R. (2021). Self-management and Spina Bifida: A systematic review of the literature. Disability and Health Journal, 14(1).

Sawin, K. J. & Ryan, P. (2011). Family self-management. In M. Craft-Rosenberg & S.-R Pehler (Eds.), Encyclopedia of family health (Vol.1, pp. 495-497). Sage.

Sawin, K. J., Weiss, M. E., Johnson, N., Gralton, K., Malin, S., Klingbeil, C., Lerret, S. M., Thompson, J. J., Zimmanck, K., Kaul, M., & Schiffman, R. F. (2017). Development of a self-management theory-guided discharge intervention for parents of hospitalized children. Journal of Nursing Scholarship, 49(2), 202-213.

Schiffman, R. F., Dorsey, S. G., McCloskey, D. J., Grady, P. A., & NINR Center Directors. (2019). Evolution of the National Institute of Nursing Research logic model for center sustainability. Nursing Outlook,67(1), 13–20.

Polfuss, M., Sawin, K. J., Papanek, P. E., Bandini, L., Forseth, B., Moosreiner, A., Zvara, K., & Schoeller, D. A. (2018). Total energy expenditure and body composition of children with developmental disabilities. Disability and Health Journal, 11(3), 442–446.  PMCID: PMC6005723 Link to article:

Polfuss, M., Moosreiner, A., Boushey, C. J., Delp, E. J., & Zhu, F. (2018). Technology-based dietary assessment in youth with and without developmental disabilities. Nutrients, 10(10), 1482.

Rodgers, B. (2014). Breaking through limbo: Experiences of adults living with obstructive sleep apnea. Behavioral Sleep Medicine, 12(3), 183-197. htttps://   PMCID: PMC3751973  Link to article:

Ryan, P., Maierle, D., Csuka, M. E, Thomson, A., & Szabo A. (2013). Computer-based intervention to enhance self-management of calcium and vitamin D intake in women. Western Journal of Nursing Research, 35(8), 986-1010.  PMCID: PMC4545626 Link to article:

Taani, M. H., Zabler, B., Fendrich, M., & Schiffman, R. (2020). Lessons learned for recruitment and retention of low-income African Americans, Contemporary Clinical Trials Communications, 17.  PMCID: PMC7083755  Link to article:

Verchota, G. & Sawin, K. J. (2016). Testing components of a self-management theory in adolescents with Type 1 Diabetes Mellitus. Nursing Research, 65(6), 487-495.

Zabler, B., Tsai, P.-Y., Fendrich, M., Cho, Y., Taani, M. H., & Schiffman, R. (2018). Effect of a nurse case management intervention for hypertension self-management in low-income African Americans. Contemporary Clinical Trials, 71, 199–204. PMCID: PMC6915064  Link to article: