The following publications by scientists affiliated with the SMSC represent findings from studies about self-management and contributions to the literature about theory, methods, and processes related to self-management or center designation.
Bonis, S. A., & Sawin, K. J. (2016). Risks and protective factors for stress self-management in parents of children with autism spectrum disorder: An integrated review of the literature. Journal of Pediatric Nursing, 31(6), 567-579. https://doi.org/10.1016/j.pedn.2016.08.006
Crowley, T., Van der Merwe, A., Kidd, M., & Skinner, D. (2020). Measuring adolescent HIV self-management: An instrument development study. AIDS and Behavior, 592-606. https://doi.org/10.1007/s10461-019-02490-z
Crowley, T., van der Merwe, A., & Skinner, D. (2019). Adolescent HIV self-management: Lived experiences of adolescents, caregivers, and health care workers in a South African context. Journal of the Association of Nurses in AIDS Care, 30(4), e7-e19. https://doi.org/10.1097/jnc.0000000000000098
Doering J. (2013). The physical and social environment of sleep in socioeconomically disadvantaged postpartum women. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 42(1), e33-43. https://doi.org/10.1111/j.1552-6909.2012.01421.x PMCID: PMC3546265. Link to article: http://www.ncbi.nlm.nih.gov/pubmed/23181913
Doering J. (2013). Theoretical contributions to a program of research promoting postpartum health. Applied Nursing Research, 26(2), 96-98. https://doi.org/10.1016/j.apnr.2012.11.003 PMCID: PMC3620732. Link to article: http://www.ncbi.nlm.nih.gov/pubmed/23290532
Doering, J. J., & Dogan, S. (2018). A postpartum sleep and fatigue intervention feasibility pilot study. Behavioral Sleep Medicine, 16(2), 185-201. https://doi.org/10.1080/15402002.2016.1180523 PMCID: PMC6156720. Link to article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6156720/
Dorsey, S. G., Schiffman, R., Redeker, N. S., Heitkemper, M., McCloskey, D. J., Weglicki, L. S., Grady, P., & NINR Center Directors. (2014). National Institute of Nursing Research Centers of Excellence: A logic model for sustainability, leveraging resources, and collaboration to accelerate cross-disciplinary science. Nursing Outlook, 62(6), 384–393. https://doi.org/10.1016/j.outlook.2014.06.003 PMCID: PMC4253141 Link to article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4253141/
Ellis, J. L., Kovach, C. R., Fendrich, M., Olukotun, O., Baldwin, V. K., Ke, W., & Nichols, B. (2019). Factors related to medication self-management in African American older women. Research in Gerontological Nursing, 12(2), 71-79. https://doi.org/10.3928/19404921-20190206-01 PMCID: PMC6918485 Link to article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6918485/
Erickson, J., Crowley, T., & Sawin K. J. (2020). Self-management in children, adolescents, and young adults with cancer: State of the science. In P. S. Hinds & L. Linder (Eds.), Pediatric oncology nursing. Defining care through science (pp. 21-61). Springer International Publishing.
Erickson, J. M. & Polfuss, M. (In press). Self-management and patient-centered care: A response to Fawcett’s 2020 essay. Nursing Science Quarterly.
Erickson, J. M., Tokarek, N., Ke, W., & Swartz, A. (2020). A randomized controlled trial of a physical activity intervention for self-management of fatigue in adolescents and young adults with cancer. Cancer Nursing. doi:10.1097/NCC.0000000000000834 PMCID: PMC7744366 Link to article: https://pubmed.ncbi.nlm.nih.gov/32568808/
Forseth, B., Papanek, P. E., Bandini, L, Schoeller, D., Moosreiner, A., Sawin, K. J., Zvara, K., Fendrich, M., & Polfuss, M. (2019). Feasibility and acceptability of a self-report activity diary in families of children with and without special needs. Comprehensive Child and Adolescent Nursing, 42(4), 293-303. https://doi.org/10.1080/24694193.2019.1606864 PMCID: PMC6915061 Link to article: https://pubmed.ncbi.nlm.nih.gov/31199888/
Forseth, B., Papanek, P. E., & Polfuss, M. L. (2020). Feasibility and applicability of Evenson sedentary behavior cut points applied to children with and without intellectual and developmental disabilities, Disability and Rehabilitation. Advance online publication. https://doi.org/10.1080/09638288.2020.1817160
Grey, M., Knafl, K., Ryan, P., & Sawin, K. J. (2010). Commentary: Self and family management frameworks. Nursing Outlook, 58(2), 111-112. https://doi.org/10.1016/j.outlook.2009.11.002
Kovach, C. R., Ellis, J. L., & Schiffman, R. F. (2018). Is assisted self-management a viable concept for individuals with cognitive impairment? [Editorial], Research in Gerontological Nursing, 11(3), 115–117. https://doi.org/10.3928/19404921-20180413-01
Lerret, S. M., White-Traut, R., Medoff-Cooper, B., Simpson, P., Adib, R., Ahamed, S. I., & Schiffman, R. (2020). Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients. Research in Nursing and Health, 43(2), 145-154. https://doi.org/10.1002/nur.22010 PMCID: PMC7047587 Link to article: https://pubmed.ncbi.nlm.nih.gov/31985067/
Logan, L. R., Sawin, K. J., Bellin, M. H., Brei, T., & Woodward, J. (2020). Self-management and independence guidelines for the care of people with Spina Bifida. Journal of Pediatric Rehabilitation Medicine, 13(4), 583-600. https://doi.org/10.3233/PRM-200734
Moore, S. M., Schiffman, R., Waldrop-Valverde, D., Redeker, N. S., McCloskey, D. J., Kim, M. T., Heitkemper, M. M., Guthrie, B. J., Dorsey, S. G., Docherty, S. L., Barton, D., Bailey, D. E., Austin, J. K., & Grady, P. (2016). Recommendations of Common Data Elements to advance the science of self-management of chronic conditions. Journal of Nursing Scholarship, 48(5), 437–447. https://doi.org/10.1111/jnu.12233
Ridosh, M. M., Stiles-Shields, C., Stern, A., Winning, A., Anderson, L., Sawin, K. J., & Holmbeck, G. N. (in press). The Adolescent and Young Adult Self-Management and Independence Scale (AMIS-II): Expanding evidence for validity and reliability. Journal of Pediatric Rehabilitation Medicine
Ryan, P. & Sawin, K. J. (2009). The Individual and Family Self-Management Theory: Background and perspectives on context process and outcomes. Nursing Outlook, 57, 217-225. https://doi.org/10.1016/j.outlook.2008.10.004 PMCID: PMC2908891 Link to article: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2908991/
Ryan, P. (2009). The Integrated Theory of Health Behavior Change: Background and intervention development. Clinical Nurse Specialist, 23(3), 161-170. https://doi.org/10.1097/NUR.0b013e3181a42373
Sawin, K. J. (2017). Definitions, frameworks, and theoretical issues in self-management. Journal of Pediatric Rehabilitation Medicine, 10(3-4), 169-176. https://doi.org/10.3233/PRM-170461
Sawin, K. J. & Brei, T. J. (2012). Self-management age-achievement expectations reported by parents of youth with spina bifida [Abstract]. Journal of Pediatric Health Care, 26(5), e43. https://doi.org/10.1016/j.pedhc.2012.07.013
Sawin, K. J., Heffelfinger, A., Cashin, S. E., & Brei, T. J. (2018). The development of the Adolescent/Young Adult Self-Management and Independence Scale II. Psychometric Data. Journal of Pediatric Rehabilitation Medicine, 11(4), 311- 322. https://doi.org/10.3233/PRM-170479
Sawin, K. J., Margolis, R., Bookman, J. R. M., Bellin, M. H., Logan, L. R., Woodward, J., & Brei, T. (2020). Analysis of self-management and transition readiness instruments for clinical practice. In C. L. Betz & I. T. Coyne (Eds.), Transition from pediatric to adult healthcare services for adolescents and young adults with long-term conditions: An international perspective on nurses’ roles and interventions (pp. 71-109). Springer. https://doi.org/10.1007/978-3-030-23384-6
Sawin, K. J., Margolis, R. H. F., Ridosh, M. M., Bellin, M. H., Woodward, J., Brei, T. J., & Logan, L. R. (2021). Self-management and Spina Bifida: A systematic review of the literature. Disability and Health Journal, 14(1). https://doi.org/10.1016/j.dhjo.2020.100940
Sawin, K. J. & Ryan, P. (2011). Family self-management. In M. Craft-Rosenberg & S.-R Pehler (Eds.), Encyclopedia of family health (Vol.1, pp. 495-497). Sage.
Sawin, K. J., Weiss, M. E., Johnson, N., Gralton, K., Malin, S., Klingbeil, C., Lerret, S. M., Thompson, J. J., Zimmanck, K., Kaul, M., & Schiffman, R. F. (2017). Development of a self-management theory-guided discharge intervention for parents of hospitalized children. Journal of Nursing Scholarship, 49(2), 202-213. https://doi.org/10.1111/jnu.12284
Schiffman, R. F., Dorsey, S. G., McCloskey, D. J., Grady, P. A., & NINR Center Directors. (2019). Evolution of the National Institute of Nursing Research logic model for center sustainability. Nursing Outlook,67(1), 13–20. https://doi.org/10.1016/j.outlook.2018.09.001
Polfuss, M., Sawin, K. J., Papanek, P. E., Bandini, L., Forseth, B., Moosreiner, A., Zvara, K., & Schoeller, D. A. (2018). Total energy expenditure and body composition of children with developmental disabilities. Disability and Health Journal, 11(3), 442–446. https://doi.org/10.1016/j.dhjo.2017.12.009 PMCID: PMC6005723 Link to article: https://pubmed.ncbi.nlm.nih.gov/29329773/
Polfuss, M., Moosreiner, A., Boushey, C. J., Delp, E. J., & Zhu, F. (2018). Technology-based dietary assessment in youth with and without developmental disabilities. Nutrients, 10(10), 1482. https://doi.org/10.3390/nu10101482
Rodgers, B. (2014). Breaking through limbo: Experiences of adults living with obstructive sleep apnea. Behavioral Sleep Medicine, 12(3), 183-197. htttps://doi.org/10.1080/15402002.2013.778203 PMCID: PMC3751973 Link to article: http://www.ncbi.nlm.nih.gov/pubmed/23570652
Ryan, P., Maierle, D., Csuka, M. E, Thomson, A., & Szabo A. (2013). Computer-based intervention to enhance self-management of calcium and vitamin D intake in women. Western Journal of Nursing Research, 35(8), 986-1010. https://doi.org/10.1177/0193945913483369 PMCID: PMC4545626 Link to article: http://www.ncbi.nlm.nih.gov/pubmed/23539320
Taani, M. H., Zabler, B., Fendrich, M., & Schiffman, R. (2020). Lessons learned for recruitment and retention of low-income African Americans, Contemporary Clinical Trials Communications, 17. https://doi.org/10.1016/j.conctc.2020.100533 PMCID: PMC7083755 Link to article: https://pubmed.ncbi.nlm.nih.gov/32211558/
Verchota, G. & Sawin, K. J. (2016). Testing components of a self-management theory in adolescents with Type 1 Diabetes Mellitus. Nursing Research, 65(6), 487-495. https://doi.org/10.1097/NNR.0000000000000180
Zabler, B., Tsai, P.-Y., Fendrich, M., Cho, Y., Taani, M. H., & Schiffman, R. (2018). Effect of a nurse case management intervention for hypertension self-management in low-income African Americans. Contemporary Clinical Trials, 71, 199–204. https://doi.org/10.1016/j.cct.2018.06.011 PMCID: PMC6915064 Link to article: https://pubmed.ncbi.nlm.nih.gov/29909058/