An early diagnosis: Helping parents and children learn more about an extremely rare disease

Associate Professor Brooke Slavens, PhD, and Professor Joyce Engel, PhD, OT, FAOTA, along with their research team and partners are researching a condition that has no known cure: Hypermobile Ehlers-Danlos syndrome (hEDS). hEDS is an inherited disorder where patients often experience frequent joint dislocations, chronic joint pain, and skin that is extremely pliable and easily bruised. The team’s goal is to devise better treatment and care plans for hEDS patients.

An early diagnosis