Participant Registry FAQ

Frequently Asked Questions

  1. What is the Participant Registry?
  2. Why have a Participant Registry?
  3. What types of participants are needed?
  4. Why should I join?
  5. What happens once I join?
  6. Are registry members obligated to be in studies?
  7. What are the risks?
  8. What are the benefits?
  9. What if I read something on the consent form that I don’t like?
  10. How often will I hear from the Research Participant Registry?
  11. Will it cost me anything to participate?
  12. Can a participant leave a research study after it has begun?
  13. What if I no longer want to be in the Research Participant Registry?
  14. How can I find out more?
  15. How do I sign up?

 
 

What is the Participant Registry?
The Participant Registry is a confidential database of individuals who have volunteered to participate in research studies associated with the Center for Aging and Translational Research (CATR). The purpose of the registry is to match potential research participants with research studies in order to conduct research that is meaningful and help promote successful aging in Southern Eastern Wisconsin and beyond.

Why have a Participant Registry?
Registries provide an efficient way to link individuals with research studies. By having the registry, CATR can notify registry participants of studies that may be of interest.

What types of participants are needed?
Participants of all ages, genders, races, ethnic groups, and health status are needed to participate in research studies

Why should I join?
By joining the Participant Registry, you will be provided the opportunity to be informed of research studies for which you may be eligible. It creates a central resource for our scientists to more efficiently recruit research participants. Participation in these studies can help promote successful aging.

What happens once I join?
Once you sign up for the Participant Registry, you will be asked to fill out a short Enrollment Survey, either online or through the mail, which asks a few questions that are commonly used by our scientists to determine if someone is eligible for a study or not. In the future, you may be contacted to participate in research studies from CATR.

Are registry members obligated to be in studies?
No, your participation in studies is always voluntary. By joining the Participant Registry you give us permission to inform you about new studies. You can always decide to participate or not participate in any study.

What are the risks?
Risks are considered minimal. Every possible effort will be made to maintain confidentiality. While the researchers have taken every reasonable step to protect your confidentiality, there is always the possibility of interception or hacking of the data by third parties that is not under the control of the research team. Your participation in this registry and any study is voluntary. You may choose to not answer any of the questions or withdraw from any study at any time without penalty. You can decide if you want to be part of associated studies or not, and you can remove your name from the registry at any time. We will not sell your name or contact information to any agencies or organizations.

What are the benefits?
There are no direct benefits to you from your taking part in this registry. This registry process of linking people in the community to aging-related research projects to assist researchers in conducting their research more efficiently. Your participation in the Participant Database will allow CATR scientists to advance knowledge related to aging-related topics.

What if I read something on the consent form that I don’t like?
Your participation in the Participant Registry and associated studies is always voluntary. You can always decide to participate or not participate in the Participant Registry or any individual study.

How often will I hear from the Research Participant Registry?
If you are eligible for a study, we will contact you on behalf of the scientist conducting the study to inform you about the study. At minimum, you may hear from CATR annually to update your information.

Will it cost me anything to participate?
There is no cost to participants in the Participant Registry.

Can a participant leave a research study after it has begun?
Your participation in the research studies is always voluntary and you can always decide to participate or not participate at any time.

What if I no longer want to be in the Research Participant Registry?
You can request to be taken out of the Participant Registry at any time. Just contact us by e-mail (catr@uwm.edu) or call at 414-229-7313 to let us know that you would like to be removed.

How can I find out more?
Click here or call 414-229-7313 to join the Participant Registry and be a part of our studies.

How do I sign up?
Click here or call 414-229-7313 to join the Participant Registry and be a part of our studies.